Division of Pediatric Gastroenterology Hepatology and Nutrition Researcher Highlights Recent Research in Inflammatory Bowel Disease (Patient, Parent, and Provider Perceptions of Barriers to Pediatric Inflammatory Bowel Disease Care): Digestive System Diseases and Conditions – Inflammatory Bowel Disease

2023 NOV 23 (NewsRx) -- By a News Reporter-Staff News Editor at Insurance Daily News -- Research findings on inflammatory bowel disease are discussed in a new report. According to news originating from Columbus, Ohio, by NewsRx editors, the research stated, “Children with inflammatory bowel disease (IBD) have a significant life-long burden as a result of disease, impacted by environmental and individual barriers. Successful health system interventions require a comprehensive approach, informed by various stakeholders.”

The news correspondents obtained a quote from the research from Division of Pediatric Gastroenterology Hepatology and Nutrition: “The main objective was to identify health system barriers and potential solutions from existing patients, families, and providers via focus groups. Participants for the focus groups were existing English-speaking patients (ages 9-18) with IBD, their caregiver(s), and providers including multiple professions (eg, physician, nurse, pediatrician, social worker, care coordinator, scheduler, and psychologist). Separate focus groups were led by experienced personnel for parents, children, and providers, using a standardized interview guide. Sessions were recorded, transcribed, and verified. Using content analysis, we systematically classified data through coding and identified themes. Focus groups comprised (a) 3 patient groups (n = 20, 50% female, including 2 younger; mean age = 11.4 ± 1.5 years) and 1 older group (mean age = 15.6 ± 1.3 years), (b) 3 parent groups (n = 24, 83% female), and © 2 multidisciplinary provider groups (n = 19). Families shared several common concerns with providers (eg, school, care delay, psychosocial, and financial) but varied on specifics. Some barriers may be addressable through family or staff education, improved communication (eg, care delay/ access, transition), or training (eg, labs and diet), while others may require change at an institutional or policy level (eg, insurance).”

According to the news reporters, the research concluded: “This qualitative analysis identified several barriers to IBD care, some shared, some unique to patients, parents, and providers, highlighting the importance of obtaining multiple stakeholder perspectives when exploring barriers to care.”

For more information on this research see: Patient, Parent, and Provider Perceptions of Barriers to Pediatric Inflammatory Bowel Disease Care. JPGN Reports, 2023,4(4). The publisher for JPGN Reports is Ovid Technologies (Wolters Kluwer Health).

A free version of this journal article is available at https://doi.org/10.1097/pg9.0000000000000386.

Our news editors report that more information may be obtained by contacting Jennifer L. Dotson, Division of Pediatric Gastroenterology Hepatology and Nutrition, Nationwide Children’s Hospital, Columbus, OH, United States. Additional authors for this research include Josh Bricker, Deena J. Chisolm, Laura M. Mackner.

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