Monash University Researchers Describe New Findings in Public Health (The Australian moratorium on genetics and life insurance: evaluating policy compared to Parliamentary recommendations regarding genetic discrimination): Health and Medicine – Public Health

2022 DEC 22 (NewsRx) -- By a News Reporter-Staff News Editor at Health & Medicine Business Daily -- Investigators publish new report on public health. According to news originating from Melbourne, Australia, by NewsRx correspondents, research stated, “Objectives and importance of study: Genetic discrimination is a health policy issue of international concern to clinicians, patients, researchers, and policy makers, and threatens the success of genomic medicine. In Australia, genetic discrimination in life insurance is legal and leads to public health harms, including deterring at-risk individuals from clinically indicated testing.”

The news correspondents obtained a quote from the research from Monash University: “In 2018, a Parliamentary Joint Committee recommended an urgent ban on the use of predictive genetic test results in life insurance underwriting in Australia, to be implemented in a form similar to the UK Code on genetic testing and life insurance. In 2019, the insurance industry, through the Financial Services Council (FSC), introduced a self-regulated moratorium that applies until 2024, but only to life insurance policies up to certain financial limits. The FSC moratorium will be reviewed in late 2022, but has no government oversight. Study type: Policy implementation evaluation We used policy evaluation methods to 1) summarise the key recommendations of the 2018 Parliamentary Committee that are directed towards practical aspects of policy development and content; and 2) assess the level of disparity between the implemented moratorium and the recommendations of the Committee. There is a substantial disparity between the Australian moratorium and the Parliamentary Committee recommendations across key areas, including addressing self-regulation, co-development of policy, protection of tests taken during its term, and similarity with the UK Code. The FSC moratorium offers less protection to consumers than the UK Code on a number of measures, including the level of financial coverage, the involvement of government, certainty provided to individuals who have genetic testing, and the treatment of research results.”

According to the news reporters, the research concluded: “The FSC moratorium is a step forward for Australia, but falls short of the Parliamentary recommendations. Further regulation by the Australian Government may be required to achieve the aims of the Parliamentary recommendations and ensure the intended level of consumer protection.”

For more information on this research see: The Australian moratorium on genetics and life insurance: evaluating policy compared to Parliamentary recommendations regarding genetic discrimination. Public Health Research & Practice, 2022,32(4). (Public Health Research & Practice - http://www.phrp.com.au/). The publisher for Public Health Research & Practice is Sax Institute.

A free version of this journal article is available at https://doi.org/10.17061/phrp3242235.

Our news editors report that more information may be obtained by contacting Jane Tiller |, Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, VIC, Australia. Additional authors for this research include Paul Lacaze |, Margaret Otlowski.

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