Legislature calls on UNM to consider center for movement disorders
The 69-year-old retired teacher, who moved to
Falling is a common symptom of Parkinson's disease, which Barteletti has suffered for at least 16 years. "He just fell outside before we came in,"
He's been dealing with the falling, the tremors and the other ravages of Parkinson's for a long time. But when Barteletti and Wells first moved to New Mexico almost four years ago, they discovered another problem, one they didn't have back in
"When we moved here to
Barteletti is one of an estimated 10,000 people in the state who lives with Parkinson's disease. The total number of those diagnosed with movement disorders in New Mexico is 250,000.
If those numbers are surprising, the number of movement disorder specialists available to treat these patients is downright shocking. There are three, all of whom practice in
With so many mobility disorder patients and so few doctors, many people with Parkinson's and other such ailments seek treatment out of state. "We just changed Rob's insurance so we can get treatment in
Having so few specialists in the state is a challenge for both the patients and the doctors, Dr. Amanda Deligtisch said in a phone interview last week. Deligtisch, who has practiced at the
"A routine wait for new patients is six to nine months -- barring a cancellation or lucky phone call," Deligtisch said. "Routine followups generally take about six months," she added, though patients who recently have changed medications or are "doing something new" with their treatment usually can be seen sooner.
As a long-term effort to help with the Parkinson's treatment shortage in the state, the
The issue got media attention last week because of a gaffe by state Sen.
"I do have to say I love actually talking about stuff with the Parkinson's folks because I get all this nodding, and it feels very affirming as I'm talking," Ivey-Soto said, evoking prompt condemnation from
But the measure passed both the
A movement disorder center at UNM would offer patients specialized care from neurologists certified to treat such disorders, as well as other health care specialists. Backers of the legislation hope the center also would train more specialists in mobility disorders who could treat patients throughout the state.
Having a movement disorder center "would help us in a lot of ways," Deligtisch said. "There's a ton more we could offer patients. A center would allow us to get patients together with a physical therapist, an occupational therapist, a nurse practitioner, a neuropsychiatrist to come up with a treatment plan."
Those who think they might have Parkinson's would still need to be diagnosed by a physician, Deligtisch said. But, after starting treatment, patients then could seek more specialized care from other health professionals.
For instance, she said, when Parkinson's patients experience increased falls, a physical therapist can help address that problem. "Access to multiple health care professionals expert in the care of movement disorders, who work as a team, gives patients the most comprehensive and effective care," Deligtisch said.
Besides Parkinson's, other types of movement disorders include chorea, dystonia, functional movement disorder,
The idea for the memorial for the movement disorder center came from
"I have family up in
Koch, who made his living in the insurance business, said he's fortunate because he has good medical coverage. Plus, he admitted, he was able to "pull strings" to get an appointment much sooner than most Parkinson's patients in New Mexico can.
"But what about someone in
Barteletti was 52 when he was diagnosed with Parkinson's, but he suspects he's had the ailment since his mid-30s. About 18 years ago, he told his doctor that he wasn't able to play guitar as well as he used to. "I said, 'I think it's Parkinson's,' " Barteletti said. But the doctor wasn't so sure.
Later that year, Barteletti was in
When he got back home, a neurologist in
When she and Barteletti first moved to New Mexico,
So she did.
Today, about 35 to 50 people attend the monthly meetings in
Koch said when he began researching Parkinson's care after he was diagnosed, the idea that New Mexico doesn't have a mobility disorder center astonished him.
"What got me upset about it was I was on the [UNM] board of regents, and I didn't know anything about it. ... If I'd have known about it when I was on the board of regents ..."
He didn't complete the sentence, but his meaning was clear.
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