Census Bureau Issues Working Paper Entitled 'Enhancing Race And Ethnicity Information In Medicaid Data – Role Of Census Bureau Data' (Part 2 of 2)

WASHINGTON, Feb. 3 (TNSrep)(TNScapv)-- The U.S. Census Bureau issued the following working paper (No. 2023-05) entitled "Enhancing Race and Ethnicity Information in Medicaid Data - The Role of Census Bureau Data."

(Continued from Part 2 of 2)

Here are excerpts:

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Baumgartner, Jesse, Sara Collins, David Radley, and Susan Hayes. 2020. "How the Affordable Care Act (ACA) Has Narrowed Racial and Ethnic Disparities in Insurance Coverage and Access to Health Care, 2013-18." Health Services Research 55 (S1): 56-57. https://doi.org/10.1111/1475-6773.13406.

Bilaver, Lucy A., Sarah A. Sobotka, and David S. Mandell. 2021. "Understanding Racial and Ethnic Disparities in Autism-Related Service Use Among Medicaid-Enrolled Children." Journal of Autism and Developmental Disorders 51 (9): 3341-55. https://doi.org/10.1007/s10803-020-04797-6.

Bohensky, Megan A., Damien Jolley, Vijaya Sundararajan, Sue Evans, David V. Pilcher, Ian Scott, and Caroline A. Brand. 2010. "Data Linkage: A Powerful Research Tool with Potential Problems." BMC Health Services Research 10 (1): 346. https://doi.org/10.1186/1472-6963-10-346.

Bond, Brittany, J. David Brown, Adela Luque, and Amy O'Hara. 2014. "The Nature of the Bias When Studying Only Linkable Person Records: Evidence from the American Community Survey." Center for Administrative Records Research and Applications Working Paper CARRA-WP-2014-08. U.S. Census Bureau.

Branham, D. Keith, Kenneth Finegold, Lucy Chen, Melony Sorbero, Roald Euller, Marc N. Elliott, and Benjamin D. Sommers. 2022. "Trends in Missing Race and Ethnicity Information After Imputation in HealthCare.Gov Marketplace Enrollment Data, 2015- 2021." JAMA Network Open 5 (6): e2216715. https://doi.org/10.1001/jamanetworkopen.2022.16715.

Brown-Podgorski, Brittany, Eric Roberts, and William Schpero. 2022. "Improving Medicaid Data To Advance Racial And Ethnic Health Equity In The United States | Health Affairs Forefront." Health Affairs. 2022. https://www.healthaffairs.org/do/10.1377/forefront.20220517.465853/full/.

Buescher, Paul A., J. Timothy Whitmire, and Barbara Pullen-Smith. 2010. "Medical Care Costs for Diabetes Associated with Health Disparities Among Adult Medicaid Enrollees in North Carolina." North Carolina Medical Journal 71 (4): 319-24. https://doi.org/10.18043/ncm.71.4.319.

Cantor, Joel C., Sujoy Chakravarty, Jose Nova, Taiisa Kelly, Derek Delia, Emmy Tiderington, and Richard W. Brown. 2020. "Medicaid Utilization and Spending among Homeless Adults in New Jersey: Implications for Medicaid-Funded Tenancy Support Services." The Milbank Quarterly 98 (1): 106-30. https://doi.org/10.1111/1468-0009.12446.

Centers for Medicare & Medicaid Services. 2021. "Chronic Conditions Warehouse User Guide." Chronic Conditions Data Warehouse. November 2021. https://www2.ccwdata.org/web/guest/user-documentation.

------. 2022. "DQ ATLAS." 2022. https://www.medicaid.gov/dq-atlas.

Compton, Elizabeth, Michael Bentley, Sharon Ennis, and Sonya Rastogi. 2013. "2010 Census Race and Hispanic Origin Alternative Questionnaire Experiment." 2010 Census Planning Memoranda Series CPEX-211. Washington, D.C.: U.S. Census Bureau.

Conrad, Frederick G., Florian Keusch, and Michael F. Schober. 2021. "New Data in Social and Behavioral Research." Public Opinion Quarterly 85 (S1): 253-63. https://doi.org/10.1093/poq/nfab027.

Davis, Melinda M., Stephanie Renfro, Robyn Pham, Kristen Hassmiller Lich, Jackilen Shannon, Gloria D. Coronado, and Stephanie B. Wheeler. 2017. "Geographic and Population-Level

Disparities in Colorectal Cancer Testing: A Multilevel Analysis of Medicaid and Commercial Claims Data." Preventive Medicine 101: 44-52. https://doi.org/10.1016/j.ypmed.2017.05.001.

Ennis, Sharon R., Sonya R. Porter, James M. Noon, and Ellen Zapata. 2018. "When Race and Hispanic Origin Reporting Are Discrepant across Administrative Records and Third Party Sources: Exploring Methods to Assign Responses." Statistical Journal of the IAOS 34: 179-89. https://doi.org/DOI 10.3233/SJI-170374.

Executive Office of the President. 2021. "Executive Order on Advancing Racial Equity and Support for Underserved Communities Through the Federal Government." Washington, D.C.: The White House. https://www.federalregister.gov/documents/2021/01/25/2021- 01753/advancing-racial-equity-and-support-for-underserved-communities-through-thefederal-government.

Fabius, Chanee D., Kali S. Thomas, Tingting Zhang, Jessica Ogarek, and Theresa I. Shireman. 2018. "Racial Disparities in Medicaid Home and Community-Based Service Utilization and Expenditures among Persons with Multiple Sclerosis." BMC Health Services Research 18 (773). https://doi.org/10.1186/s12913-018-3584-x.

Fernandez, Leticia E., Sonya Rastogi, Sharon R. Ennis, and James M. Noon. 2015. "Evaluating Race and Hispanic Origin Responses of Medicaid Participants Using Census Data." Center for Administrative Records Research and Applications Working Paper CARRAWP-2015-01. Washington, D.C.: U.S. Census Bureau.

Finlay, Keith, and Katie R. Genadek. 2021. "Measuring All-Cause Mortality with the Census Numident File." American Journal of Public Health 111 (S2): S141-48. https://doi.org/10.2105/AJPH.2021.306217.

Groves, Robert M. 2011. "Three Eras of Survey Research." Public Opinion Quarterly 75 (5): 861-71. https://doi.org/10.1093/poq/nfr057.

Grundmeier, Robert W, Lihai Song, Mark J Ramos, Alexander G Fiks, Marc N Elliott, Allen Fremont, Wilson Pace, Richard C Wasserman, and Russell Localio. 2015. "Imputing Missing Race/Ethnicity in Pediatric Electronic Health Records: Reducing Bias with Use of U.S. Census Location and Surname Data." Health Services Research 50 (4): 946-60. https://doi.org/10.1111/1475-6773.12295.

Heflinger, Craig Anne, Jamie Chatman, and Robert C. Saunders. 2006. "Racial and Gender Differences in Utilization of Medicaid Substance Abuse Services Among Adolescents." Psychiatric Services 57 (4): 504-11. https://doi.org/10.1176/ps.2006.57.4.504.

Horvitz-Lennon, Marcela, Rita Volya, Rachel Garfield, Julie M. Donohue, Judith R. Lave, and Sharon-Lise T. Normand. 2015. "Where You Live Matters: Quality and Racial/Ethnic Disparities in Schizophrenia Care in Four State Medicaid Programs." Health Services Research 50 (5): 1710-29. https://doi.org/10.1111/1475-6773.12296.

Institute of Medicine. 2009. "Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement." Washington, D.C.: The National Academic Press.

James, Cara, Smita Pamar, Sarah Hudson Scholle, Philip Saynisch, Jeni Soucie, and Barbara Lyons. 2021. "Federal Action Is Needed to Improve Race and Ethnicity Data in Health Programs." Washington, D.C.: Grantmakers in Health and National Committee for Quality Assurance. https://www.gih.org/wp-content/uploads/2021/10/GIHCommonwealth-Fund-federal-data-report-part-1.pdf.

Khan, Tsnuva, Esa Eslami, Lello Guluma, Kimberly Proctor, and Jessie Parker. 2019. "Quantifying the Distribution and Completeness of Select Demographic Variables in 2016." TAF DQ Brief #4121. Baltimore, MD: CMS.

Kirby, James B., and Toshiko Kaneda. 2010. "Unhealthy and Uninsured: Exploring Racial Differences in Health and Health Insurance Coverage Using a Life Table Approach." Demography 47 (4): 1035-51. https://doi.org/10.1007/BF03213738.

Klinger, Elissa V., Sara V. Carlini, Irina Gonzalez, Stella St. Hubert, Jeffrey A. Linder, Nancy A. Rigotti, Emily Z. Kontos, Elyse R. Park, Lucas X. Marinacci, and Jennifer S. Haas. 2015. "Accuracy of Race, Ethnicity, and Language Preference in an Electronic Health Record." Journal of General Internal Medicine 30 (6): 719-23. https://doi.org/10.1007/s11606- 014-3102-8.

Kressin, Nancy R., Bei-Hung Chang, Ann Hendricks, and Lewis E. Kazis. 2003. "Agreement Between Administrative Data and Patients' Self-Reports of Race/Ethnicity." American Journal of Public Health 93 (10): 1734-39. https://doi.org/10.2105/AJPH.93.10.1734.

Krieger, Nancy, Jarvis T. Chen, James H. Ware, and Afamia Kaddour. 2008. "Race/Ethnicity and Breast Cancer Estrogen Receptor Status: Impact of Class, Missing Data, and Modeling Assumptions." Cancer Causes & Control 19 (10): 1305-18. https://doi.org/10.1007/s10552-008-9202-1.

Krieger, Nancy, Gregg Gonsalves, Mary T. Bassett, William Hanage, and Harlan M. Krumholz. 2020. "The Fierce Urgency of Now: Closing Glaring Gaps In US Surveillance Data On COVID-19." Health Affairs. 2020. https://www.healthaffairs.org/do/10.1377/forefront.20200414.238084/full/.

Labgold, Katie, Sarah Hamid, Sarita Shah, Neel R. Gandhi, Allison Chamberlain, Fazle Khan, Shamimul Khan, et al. 2021. "Estimating the Unknown: Greater Racial and Ethnic Disparities in COVID-19 Burden After Accounting for Missing Race and Ethnicity Data." Epidemiology 32 (2): 157-61. https://doi.org/10.1097/EDE.0000000000001314.

Lee, Hyunjung, and Frank W. Porell. 2020. "The Effect of the Affordable Care Act Medicaid Expansion on Disparities in Access to Care and Health Status." Medical Care Research and Review 77 (5): 461-73. https://doi.org/10.1177/1077558718808709.

Liebler, Carolyn A., Sonya R. Porter, Leticia E. Fernandez, James M. Noon, and Sharon R. Ennis. 2017. "America's Churning Races: Race and Ethnicity Response Changes Between Census 2000 and the 2010 Census." Demography 54 (1): 259-84. https://doi.org/10.1007/s13524-016-0544-0.

Lillie-Blanton, Marsha, and Catherine Hoffman. 2005. "The Role Of Health Insurance Coverage In Reducing Racial/Ethnic Disparities In Health Care." Health Affairs 24 (2): 398-408. https://doi.org/10.1377/hlthaff.24.2.398.

MACPAC. 2021a. "MACStats Medicaid and CHIP Data Book December 2021." Washington, DC: Medicaid and CHIP Payment and Access Commission. https://www.macpac.gov/wp-content/uploads/2021/12/MACStats-Medicaid-and-CHIPData-Book-December-2021.pdf.

------. 2021b. "Re: Request for Information: Methods and Leading Practices for Advancing Equity and Support for Underserved Communities through Government Action, Federal Register, Vol 86, No. 85, May 5, 2021," 2021. https://www.macpac.gov/wpcontent/uploads/2021/07/Comment-on-RFI-on-Advancing-Equity.pdf.

Mahajan, Shiwani, Cesar Caraballo, Yuan Lu, Javier Valero-Elizondo, Daisy Massey, Amarnath R. Annapureddy, Brita Roy, et al. 2021. "Trends in Differences in Health Status and Health Care Access and Affordability by Race and Ethnicity in the United States, 1999- 2018." JAMA 326 (7): 637-48. https://doi.org/10.1001/jama.2021.9907.

Marton, James, Aaron Yelowitz, Meredith Shores, and Jeffery C. Talbert. 2016. "Does Medicaid Managed Care Help Equalize Racial and Ethnic Disparities in Utilization?" Health Services Research 51 (3): 872-91. https://doi.org/10.1111/1475-6773.12396.

McAlpine, Donna D., Timothy J. Beebe, Michael Davern, and Kathleen T. Call. 2007. "Agreement between Self-Reported and Administrative Race and Ethnicity Data among Medicaid Enrollees in Minnesota: Self-Reported and Administrative Race and Ethnicity Data." Health Services Research 42 (6p2): 2373-88. https://doi.org/10.1111/j.1475- 6773.2007.00771.x.

McConnell, K. John, Christina J. Charlesworth, Thomas H. A. Meath, Rani M. George, and Hyunjee Kim. 2018. "Oregon's Emphasis on Equity Shows Signs of Early Success For Black And American Indian Medicaid Enrollees." Health Affairs 37 (3): 386-93. https://doi.org/10.1377/hlthaff.2017.1282.

Melendez, Mitzi, Suzanne Campanella, Samantha Rosner, Tabitha Pyatt, Bryan Gustafson, Jordan Katz, and Emily Tcheng. 2022. "The State of the Collection of Race, Ethnicity, and Language Data in Medicaid." NORC at the University of Chicago.

Miyawaki, Michael Hajime. 2016. "Part-Latinos and Racial Reporting in the Census: An Issue of Question Format?" Sociology of Race and Ethnicity 2 (3): 289-306. https://doi.org/10.1177/2332649215613531.

Mooney, Stephen J., and Vikas Pejaver. 2018. "Big Data in Public Health: Terminology, Machine Learning, and Privacy." Annual Review of Public Health 39 (1): 95-112. https://doi.org/10.1146/annurev-publhealth-040617-014208.

National Research Council. 2004. Eliminating Health Disparities: Measurement and Data Needs. Edited by Panel on DHHS Collection of Race and Ethnicity Data, Michele Ver Ploeg, and Edward Perrin. Washington, D.C.: The National Academies Press. https://doi.org/10.17226/10979.

Ng, Judy H., Faye Ye, Lauren M. Ward, Samuel C. "Chris" Haffer, and Sarah Hudson Scholle. 2017. "Data On Race, Ethnicity, And Language Largely Incomplete For Managed Care Plan Members." Health Affairs 36 (3): 548-52. https://doi.org/10.1377/hlthaff.2016.1044.

Office of Management and Budget. 1997. "Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity." The White House. 1997. https://obamawhitehouse.archives.gov/node/15626.

Polubriaginof, Fernanda C G, Patrick Ryan, Hojjat Salmasian, Andrea Wells Shapiro, Adler Perotte, Monika M Safford, George Hripcsak, Shaun Smith, Nicholas P Tatonetti, and David K Vawdrey. 2019. "Challenges with Quality of Race and Ethnicity Data in Observational Databases." Journal of the American Medical Informatics Association 26 (8-9): 730-36. https://doi.org/10.1093/jamia/ocz113.

Polyakova, Maria, Victoria Udalova, Geoffrey Kocks, Katie Genadek, Keith Finlay, and Amy N. Finkelstein. 2021. "Racial Disparities in Excess All-Cause Mortality During the Early COVID-19 Pandemic Varied Substantially Across States." Health Affairs (Project Hope) 40 (2): 307-16. https://doi.org/10.1377/hlthaff.2020.02142.

Powers, David, Sara Robinson, Edward Berchick, J. Alex Branham, Lucinda Dalzell, Lorelle Dennis, Kristi Eckerson, et al. 2021. "Evaluating the Utility of Emergency Department Encounter Data and Examining Social Determinants of Emergency Department Utilization in Utah." SEHSD Working Paper Series 2021-07. Washington, D.C.: U.S. Census Bureau.

Rastogi, Sonya, and Amy O'Hara. 2012. "2010 Census Match Study." 2010 Planning Memoranda Series No. 247. Washington, D.C.: U.S. Census Bureau.

Ringwalt, Chris, Andrew W. Roberts, Hallam Gugelmann, and Asheley Cockrell Skinner. 2015.

"Racial Disparities Across Provider Specialties in Opioid Prescriptions Dispensed to Medicaid Beneficiaries with Chronic Noncancer Pain." Pain Medicine 16 (4): 633-40. https://doi.org/10.1111/pme.12555.

Samnaliev, Mihail, Mark P. McGovern, and Robin E. Clark. 2009. "Racial/Ethnic Disparities in Mental Health Treatment in Six Medicaid Programs." Journal of Health Care for the Poor and Underserved 20 (1): 165-76. https://doi.org/10.1353/hpu.0.0125.

Saperstein, Aliya, and Andrew M. Penner. 2012. "Racial Fluidity and Inequality in the United States." American Journal of Sociology 118 (3): 676-727. https://doi.org/10.1086/667722.

Sholle, Evan T, Laura C Pinheiro, Prakash Adekkanattu, Marcos A Davila III, Stephen B Johnson, Jyotishman Pathak, Sanjai Sinha, et al. 2019. "Underserved Populations with Missing Race Ethnicity Data Differ Significantly from Those with Structured Race/Ethnicity Documentation." Journal of the American Medical Informatics Association 26 (8-9): 722-29. https://doi.org/10.1093/jamia/ocz040.

Silber, Jeffrey H., Paul R. Rosenbaum, Shawna R. Calhoun, Joseph G. Reiter, Alexander S. Hill, James P. Guevara, Joseph J. Zorc, and Orit Even-Shoshan. 2017. "Racial Disparities in Medicaid Asthma Hospitalizations." Pediatrics 139 (1): e20161221. https://doi.org/10.1542/peds.2016-1221.

Smedley, Brian D., Adrienne Y. Stith, and Alan R. Nelson, eds. 2003. Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. Washington, D.C.: National Academies Press. https://doi.org/10.17226/12875.

Sorbero, Melony E, Roald Euller, Aaron Kofner, and Marc N Elliott. 2022. "Imputation of Race and Ethnicity in Health Insurance Marketplace Enrollment Data, 2015-2022 Open Enrollment Periods." RR-A1853-1. Santa Monica, CA: RAND Corporation. https://www.rand.org/pubs/research_reports/RRA1853-1.html.

Staras, Stephanie A.S., Susan T. Vadaparampil, Laura T. Haderxhanaj, and Elizabeth A. Shenkman. 2010. "Disparities in Human Papillomavirus Vaccine Series Initiation Among Adolescent Girls Enrolled in Florida Medicaid Programs, 2006-2008." The Journal of Adolescent Health 47 (4): 381-88. https://doi.org/10.1016/j.jadohealth.2010.07.028.

Tangka, Florence K., Sujha Subramanian, Lee Rivers Mobley, Sonja Hoover, Jiantong Wang, Ingrid J. Hall, and Simple D. Singh. 2017. "Racial and Ethnic Disparities among State Medicaid Programs for Breast Cancer Screening." Preventive Medicine 102: 59-64. https://doi.org/10.1016/j.ypmed.2017.06.024.

Terry, Rodney L., and Marissa Fond. 2013. "Experimental U.S. Census Bureau Race and Hispanic Origin Survey Questions: Reactions from Spanish Speakers." Hispanic Journal of Behavioral Sciences 35 (4): 524-41. https://doi.org/10.1177/0739986313499007.

Udalova, Victoria, Timothy S. Carey, Paul Roman Chelminski, Lucinda Dalzell, Patricia Knoepp, Joanna Motro, and Barbara Entwisle. 2022. "Linking Electronic Health Records to the American Community Survey: Feasibility and Process." American Journal of Public Health, April, e1-8. https://doi.org/10.2105/AJPH.2022.306783.

U.S. Department of Health and Human Services. 2020. "Social Determinants of Health." Healthy People 2030. https://health.gov/healthypeople/priority-areas/social-determinants-health.

Wagner, Deborah, and Mary Layne. 2014. "The Person Identification Validation System (PVS): Applying the Center for Administrative Records Research and Applications' (CARRA) Record Linkage Software." CARRA Working Paper Series. U.S. Census Bureau.

Whitney, Melissa, Ellen Singer, Allison Barrett, Kimberly Proctor, and Jessie Parker. 2020. "Unique Beneficiary Identifiers in the TAF RIF in 2016." TAF DQ Brief #3031. Baltimore, MD: CMS.

Zhang, Shun, Kathryn Cardarelli, Ruth Shim, Jiali Ye, Karla L. Booker, and George Rust. 2013. "Racial Disparities in Economic and Clinical Outcomes of Pregnancy Among Medicaid Recipients." Maternal and Child Health Journal 17 (8): 1518-25. https://doi.org/10.1007/s10995-012-1162-0.

Zylla, Emily, and Elizabeth Lukanen. 2021. "Collection of Race, Ethnicity, Language (REL) Data in Medicaid Applications: A 50-State Review of the Current Landscape." State Health Access Data Assistance at the University of Minnesota.

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The working paper is posted at: https://www.census.gov/content/dam/Census/library/working-papers/2023/demo/sehsd-wp2023-05.pdf