Researchers from University of Iowa Describe Findings in Genetic Counseling and Psychology (A survey of U. S. state insurance commissioners concerning genetic testing and life insurance: Redux at 27)

2019 DEC 30 (NewsRx) -- By a News Reporter-Staff News Editor at Engineering Business Daily -- A new study on Genetics - Genetic Counseling and Psychology is now available. According to news originating from Iowa City, Iowa, by NewsRx correspondents, research stated, “Nearly three decades ago, scientists set out on one of the largest research endeavors in modern history-mapping the human genome. The research not only sparked new technologies and genetic tests, but also concomitant concerns regarding ethical, legal, and social implications of the technologies.”

Financial support for this research came from National Human Genome Research Institute of the National Institutes of Health.

Our news journalists obtained a quote from the research from the University of Iowa, “These developments ultimately resulted in an expanded role for genetic counselors to educate consumers about the possible consequences of receiving genetic test results. In particular, many individuals undergoing testing worry that the resulting information could be used by social actors, such as life insurers, in harmful ways. Because life insurance is regulated at the state level, there is significant variability across the United States in laws and enforcement protecting consumers’ genetic information. This article reports the results of a survey of U.S. state insurance commissioners regarding regulation of genetic testing and life insurance. The survey builds on a 1992 survey conducted by Jean E. McEwen et al. It returns to current U.S. state insurance commissioners to investigate changes in the climate surrounding genetic information use and risks of misuse within the insurance industry. In their 1992 survey, McEwen et al. found that: (a) genetic testing was not yet perceived to pose a significant problem for insurance rating, (b) life insurers had quite a bit of legal freedom to require and use genetic test results, and © insurance commissioners had received few consumers’ complaints about the use of genetic information. Twenty-seven years later, our survey finds an increase in regulation protecting genetic information in insurance, but at a pace much slower than that of advances in new DNA technologies. This lag in policy to match technology increases potential risks for consumers. Our study further reveals certain inconsistencies in the letter of state law protecting consumers’ genetic information and how state insurance commissioners apply that law. The study also shows that despite empirical evidence in the literature demonstrating consumer fear about genetic discrimination, consumers do not report these concerns to their state insurance commissioner.”

According to the news editors, the research concluded: “We suggest genetic counselors are key stakeholders who can help fill current gaps between consumers and the insurance industry.”

For more information on this research see: A survey of U. S. state insurance commissioners concerning genetic testing and life insurance: Redux at 27. Journal of Genetic Counseling, 2019;():. Journal of Genetic Counseling can be contacted at: Springer, 233 Spring Street, New York, NY 10013, USA. (Springer - www.springer.com; Journal of Genetic Counseling - http://www.springerlink.com/content/1059-7700/)

The news correspondents report that additional information may be obtained from D.R. Golinghorst, University of Iowa College of Law, University of Iowa, Iowa City, IA, United States.

The direct object identifier (DOI) for that additional information is: https://doi.org/10.1002/jgc4.1197. This DOI is a link to an online electronic document that is either free or for purchase, and can be your direct source for a journal article and its citation.

The publisher’s contact information for the Journal of Genetic Counseling is: Springer, 233 Spring Street, New York, NY 10013, USA.

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