Findings from Ryan Haumschild et al Update Understanding of Mucopolysaccharidoses (AMCP Market Insights: The role of managed care in improving patient care in mucopolysaccharidoses): Nutritional and Metabolic Diseases and Conditions – Mucopolysaccharidoses

2026 FEB 18 (NewsRx) -- By a News Reporter-Staff News Editor at Insurance Daily News -- New research on Nutritional and Metabolic Diseases and Conditions - Mucopolysaccharidoses is the subject of a report. According to news reporting originating in Atlanta, Georgia, by NewsRx journalists, research stated, “The mucopolysaccharidoses (MPS) are a group of rare genetic disorders that cause chronic, progressive cellular damage, which can affect multiple organ systems and lead to reduced life expectancy. Diagnosis and treatment of MPS are often delayed, during which irreversible organ damage can occur.”

The news reporters obtained a quote from the research, “Treatments are not currently available for all MPS subtypes, and those that are available are associated with significant limitations. The therapeutic pipeline for MPS is active; however, bringing new treatments for rare conditions to market is difficult. To discuss the role of managed care in improving patient care and outcomes in MPS, AMCP Market Insights virtually convened an expert panel of managed care stakeholders in September 2025. Key insights from the discussion were that the earliest possible intervention is crucial to improving outcomes in MPS; expertise is limited because of the rarity of these disorders; patients and caregivers face significant challenges accessing treatments and other interventions for MPS; and the therapeutic pipeline for MPS holds promise for addressing some critical treatment gaps but leaves others unmet.”

According to the news reporters, the research concluded: “Suggested payer practices for MPS also emerged from the discussion.”

This research has been peer-reviewed.

For more information on this research see: AMCP Market Insights: The role of managed care in improving patient care in mucopolysaccharidoses. Journal of Managed Care & Specialty Pharmacy, 2026;32. Journal of Managed Care & Specialty Pharmacy can be contacted at: Acad Managed Care Pharmacy, 100 N Pitt St, 400, Alexandria, VA 22314-3134, USA.

Our news correspondents report that additional information may be obtained by contacting Ryan Haumschild, Emory Healthcare and Winship Cancer Institute, Atlanta, GA. Additional authors for this research include Bridget Flavin, Terri K. Klein, Kristin McKay, Timothy Mok, Cara O’Neill, Michelle Rice, Kim Stephens and Elizabeth Stoltz.

The publisher of the Journal of Managed Care & Specialty Pharmacy can be contacted at: Acad Managed Care Pharmacy, 100 N Pitt St, 400, Alexandria, VA 22314-3134, USA.

(Our reports deliver fact-based news of research and discoveries from around the world.)