‘Baby Izaiah’ has made progress since crash nine years ago
Nine years ago last month in
Now 10 years old, the child once known as "Baby Izaiah" remains severely disabled and his parents,
During a family visit to a park in
"I enjoy being a mom and I love taking care of him," she said. "It's a good feeling to know you're helping someone."
On the morning of
Izaiah suffered a traumatic brain injury, was paralyzed from the chest down, left unable to breath without a ventilator, was comatose and lost his vision. He wasn't expected to live, and if he did, doctors warned Wallis and Verde that he'd probably be in a permanent vegetative state.
But Izaiah defied expectations. He regained his sight and many of his cognitive functions. He learned to use his arms to pull his lower body around and to use his hands to turn book pages and clap whenever he's happy. He also learned how to use an iPad to watch his favorite animated movies and use software to create simple sentences on the iPad like "I want a book."
Although Izaiah never regained the ability to speak, he can say a few words, like his name, "hi" and "hey." Verde said she thinks she heard him say "Mama" a few weeks ago, but she wonders now if it was wishful thinking.
Although a
Fortunately, the family has been helped over the years by Passion 4 Kids, an
"We're doing OK right now," Verde said. "It's a struggle, but we're managing."
The couple gets by with one of them working full time and the other serving as Izaiah's full-time caregiver. Wallis, 30, recently started a new job selling cars with his uncle. His income pays for the mortgage, utilities and groceries.
A mix of insurance, disability payments and grants pay for Izaiah's physical therapy and for a night nurse four evenings a week. Verde covers the other three nights. Every two hours, Izaiah needs medical care, including diaper changes, catheter bag changes, breathing treatments, body adjustments to avoid bedsores and maintenance of his ventilator system.
Verde said she tried attending college last year — she dreams of working in the medical field one day — but exhaustion from the all-night shifts and Izaiah's periodic medical crises led her to drop out. Over the years, Izaiah has been hospitalized dozens of times, usually for pneumonia or high fevers.
In recent years, Izaiah's lungs have grown stronger, so he hasn't required as many hospitalizations for pneumonia. But in September, he was hospitalized with a broken leg. Because of his paralysis, Izaiah's lower limb bones have grown fragile. When he was using his arms to move around in his bed a few months ago, his hip became locked and he broke a femur.
To build muscle and bone strength, Izaiah attends physical therapy sessions every week. The therapists put his body in a swing-like sling and position him over a treadmill, where he practices a walking motion.
"That's his favorite thing. When he's on the treadmill, he stares down at his feet and he claps his hands. It makes him so happy," Verde said.
Although Izaiah is generally a happy boy with a big smile, his brain injury sometimes leads to fits of temper. Last month, he became frustrated and threw his iPad and broke it. The family hasn't been able to afford a new one, but Verde said she can usually guess what her son wants by reading his eyes.
On weekdays from
Their daughter, Caliah, attends second grade at a local Montessori school. Because she has grown up watching her parents care for Izaiah, "Cali" prides herself in her own nursing abilities. During the visit to the park on Sunday, Cali would ride a swing for a few minutes, then periodically rush to her brother's wheelchair to adjust a hoodie to protect his eyes from the sun. Later she admonished her mom for talking too loud because Izaiah needed a nap.
"All of her life, Izaiah has been this way so she's used to it," Verde said. "She's really good with him and so loving."
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