Advocates representing nearly all 50 states will share their stories and urge their Congressional delegations to support public policy priorities that advance kidney disease prevention, early detection, treatment, research and access to transplants, including living organ donation.
Actor, activist, and entrepreneur
During their individual meetings with Members of
- Pass the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act (HR 5534/S.3353) which extends Medicare coverage of immunosuppressive drugs for kidney transplant patients beyond the 36-month cut-off currently in place to cover medications for the life of the transplant;
- Increase funding for kidney disease research and programs including a nationwide Kidney Risk Campaign to reach the undiagnosed who are unaware they are affected by kidney disease. An estimated 37 million adults in the
U.S.are affected by kidney disease but 90% are unaware they even have it. Many patients don't learn they have kidney disease until their kidneys have already failed. Early diagnosis can help stave off the deadly complications of this disease including dialysis and kidney transplant; and
- Pass the Living Donor Protection Act (S. 511 and H.R. 1224), which prohibits insurance companies from denying or limiting life, disability and long-term care insurance to living donors and from charging higher premiums, and also ensures job protections for organ donors who need to take medical leave for organ donation and recovery after surgery.
"I'm continuously inspired by our advocates, who help push for legislation to improve the lives of the 37 million adults in the
The Summit officially opens
Kidney Disease Facts