Recent Findings in Data Sharing Described by Researchers from University of Michigan (Patient Experiences, Trust, and Preferences for Health Data Sharing): Information Technology – Data Sharing

2022 JUL 28 (NewsRx) -- By a News Reporter-Staff News Editor at Insurance Daily News -- Data detailed on Information Technology - Data Sharing have been presented. According to news reporting from Ann Arbor, Michigan, by NewsRx journalists, research stated, “Scholars have examined patients’ attitudes toward secondary use of routinely collected clinical data for research and quality improvement. Evidence suggests that trust in health care organizations and physicians is critical.”

Financial support for this research came from National Institutes of Health (NIH) - USA.

The news correspondents obtained a quote from the research from the University of Michigan, “Less is known about experiences that shape trust and how they influence data sharing preferences. To explore learning health care system (LHS) ethics, democratic deliberations were hosted from June 2017 to May 2018. A total of 217 patients with cancer participated in facilitated group discussion. Transcripts were coded independently. Finalized codes were organized into themes using interpretive description and thematic analysis. Two previous analyses reported on patient preferences for consent and data use; this final analysis focuses on the influence of personal lived experiences of the health care system, including interactions with providers and insurers, on trust and preferences for data sharing. Qualitative analysis identified four domains of patients’ lived experiences raised in the context of the policy discussions: (1) the quality of care received, (2) the impact of health care costs, (3) the transparency and communication displayed by a provider or an insurer to the patient, and (4) the extent to which care coordination was hindered or facilitated by the interchange between a provider and an insurer. Patients discussed their trust in health care decision makers and their opinions about LHS data sharing. Additional resources, infrastructure, regulations, and practice innovations are needed to improve patients’ experiences with and trust in the health care system.”

According to the news reporters, the research concluded: “Those who seek to build LHSs may also need to consider improvement in other aspects of care delivery.”

This research has been peer-reviewed.

For more information on this research see: Patient Experiences, Trust, and Preferences for Health Data Sharing. JCO Oncology Practice, 2022;18(3). JCO Oncology Practice can be contacted at: Lippincott Williams & Wilkins, Two Commerce Sq, 2001 Market St, Philadelphia, PA 19103, USA.

Our news journalists report that additional information may be obtained by contacting Reshma Jagsi, University of Michigan, Ann Arbor, MI 48109, United States. Additional authors for this research include Rochelle D. Jones, Chris Krenz, Kent A. Griffith, Raymond De Vries, Sarah T. Hawley, Rebecca Spence, Richard L. Schilsky, Angela R. Bradbury, Robin Zon, Sage Bolte and Navid Sadeghi.

The direct object identifier (DOI) for that additional information is: https://doi.org/10.1200/OP.21.00491. This DOI is a link to an online electronic document that is either free or for purchase, and can be your direct source for a journal article and its citation.

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