ALS Advocates Secure Rare Bipartisan Support for End to Five-Month Wait for Social Security Disability Insurance
"People living with ALS, along with their families and supporters, created the momentum and support for this bill," said
ALS is a neurodegenerative disease that is 100 percent fatal. It takes about a year to confirm a diagnosis and there is no cure. Average life expectancy is two to five years following diagnosis. People with ALS lose the ability to initiate and control muscle movement. As a result, they lose their jobs and employer-based insurance during the most challenging periods of their lives. Recognizing the devastating nature of ALS,
"This victory would not have been possible without the ALS community's countless letters, calls and virtual and in-person visits urging action by
"Because of its degenerative and often aggressive nature, some people living with ALS lose their fight with the disease before the five-month waiting period is over," Balas added. "It is essential that we eliminate this harmful waiting period and allow immediate access to disability benefits for those who have received an ALS diagnosis."
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