Lejeune teen seeks surgery for rare eye disease
By Adelina Colbert, The Daily News, Jacksonville, N.C. | |
McClatchy-Tribune Information Services |
"He's great. He's kind. He's caring. He's loving," said
But one night, while Jonathan was doing his homework in his
"It was just really blurry," Jonathan said. "I couldn't see."
Several weeks later, the problem with Jonathan's vision persisted and after numerous doctor appointments and testing, Billie said Jonathan's vision was down to 20/80 and doctors had diagnosed him with a rare eye disease.
"The ophthalmologist did testing on him and said he had keratoconus," she said. "I thought you know it was just some eye thing ... they will give him contacts or eye glasses or eye drops and he'll be good to go but it was not that easy."
According to the
Due to his condition, Billie said doctors had told Jonathan that he would have no chance of joining the
"Within five minutes, I'm sitting there watching my son's dreams get crushed," she said. "... I had to walk out of the room because I didn't want him to see me upset."
Billie said the non-
"Insurance will not cover anything that is not
Without options, Billie said she decided to turn to social media as a means of telling Jonathan's story and seek donations for his surgery.
"After we started doing fundraising on our own and realized we weren't going anywhere, we decided to start a GoFundMe," she said. "We posted it on Facebook, Instagram -- I never had a Twitter until two weeks ago."
Billie said Jonathan's fundraising webpage was seen by a
"She went to Instagram with it," she said. "She tagged a whole bunch of different people and one of them happened to be
Billie said it was "within no time" that she received word from Williams' representative telling the family to contact Dr.
"When he called me at first, I thought this was a joke," she said. "But they were not joking ... they are trying to spread awareness for keratoconus also."
According to Williams, he decided to share Jon's story because he believes it was what Jonathan deserved as part of the military family. "When I saw the post on my Instagram about Jon's story, I remembered having interviewed
"This one patient happened to see Jon's story and was really touched by it," Wachler said.
Today, Billie said her family continues to fundraise for Jonathan to help pay for the expenses that comes with the trip to
"Now our challenge is just getting to
Billie said the family is aiming to raise
"Over the past couple of days, we have gotten tremendous amounts of support from the community and I cannot thank the community enough for their tremendous amount of support, donations and standing behind us," she said.
Meanwhile, Jonathan faces daily challenges associated with the condition.
"It makes school pretty hard because you really can't see much," he said. "You have to sit at the back of the classroom and you have to squint a little bit to see the board."
For Jonathan, this surgery would be life-changing.
"It means I can do more than I could without the surgery," he said. "(It means) I can drive because you have to have clear eye vision to drive."
To donate, visit GoFundMe.com/cxgc40.
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