Families of The Arc Meet with White House on Medicaid Funding as Budget Deal Nears
Yesterday, families from
“The Arc had the opportunity to touch the hearts and minds of some of the most powerful people in government today, and our message was clear – don’t cut the lifeline for these families.
About the Keatons of
About the O’Briens of
Deirdre O’Brien has two children, including her 13-year-old daughter, Clare, who has significant intellectual disabilities. Clare also suffers from abdominal migraines, which are similar to traditional migraines but the pain is in the stomach and causes her to vomit continuously for days. Two years ago, Clare’s migraines became very severe, occurring nearly every two weeks. Her hemoglobin dropped severely, she missed a significant amount of school and her parents missed work to take care of her. During this period, the O’Brien family saw no alternative but for Deirdre to quit her job and stay at home in case her daughter became ill. The state of
About the Rodriguezes of
Natalie and Ruben are parents of 31-year-old TJ, who was born with significant intellectual and developmental disabilities. TJ needs assistance with everyday activities like bathing, brushing his teeth, getting dressed in the morning, communicating effectively, walking, and preparing his meals. As he has gotten older, TJ’s mobility challenges have greatly increased along with his medical needs.
About the Brandts of
The stories these families have shared with the
• One-third of parents and caregivers reported that they are on waiting lists for government funded services, with the average wait more than five years.
• One out of five families report that someone in the family had to quit a job to stay at home and support the needs of a family member.
• Most family caregivers (58%) provide more than 40 hours of care per week (including 40% who provide more than 80 hours of care per week). This interferes with their work (71%) and causes physical (88%) and financial strain (81%).
• Sixty two percent of caregivers reported a decrease in services for their family member with a disability.
“These statistics came to life at the
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Read the full story at http://www.prweb.com/releases/The-Arc/Medicaid-funding/prweb8625183.htm